Something’s Wrong
Posted by Dr. Cason on Saturday, July 19th, 2008
They found something on the scope- a swollen esophagus- may be eosinophilic esophagitis. Don’t ask I still have research to do.
Now this morning his immunodeficiency labs came back abnormal. We will go in for some repeat labs and a sit down talk.
Now I’m getting worried.
He’s running around eating pretzels and grapes and I can’t stop crying.
Filed in My Life | 26 responses so far
Audubon Ronon 19 Jul 2008 at 4:39 am 1I’m sorry.
Audubon Rons last blog post..Time for a Quicky
Awesome Momon 19 Jul 2008 at 4:54 am 2I hope that it is nothing too serious! Hang in there!
Awesome Moms last blog post..In case you were wondering….
Lisaon 19 Jul 2008 at 5:27 am 3Remember knowing what’s wrong will put the power back in your lives. First a diagnosis, then a plan. I’m thinking of you guys.
Lisas last blog post..Legoland has an age limit, and I think I am over it.
Erinon 19 Jul 2008 at 5:35 am 4Oh, I am so sorry to hear that!
But, Lisa very neatly summed up what I was struggling to say. I kept thinking as I waited for the page to load to leave my comment that finding something could be a good thing. Not that it’s good that there’s something wrong with your baby, but now you know where to start looking for answers.
Still thinking about you, hoping for you, praying for you.
Erins last blog post..Awesome/NOT Awesome
Lanceon 19 Jul 2008 at 7:03 am 5I’m so sorry to hear this. It has to be difficult, and I can only imagine. I’ll be praying for you and Jake. Hang in there.
Lances last blog post..Defeat
Ann at One Bag Nationon 19 Jul 2008 at 7:23 am 6I’m sorry! I haven’t followed the story of your son’s illness from the beginning, but I don’t need to know the details to know how scary and stressful this time must be for you. I’ll be thinking of you.
Ann at One Bag Nations last blog post..Check it Out – I’m Swimming with the Sharks!
Melissa Lagerquiston 19 Jul 2008 at 8:05 am 7I hope you and Jake can get some answers very soon. Ignorance is most certainly NOT bliss!
Trishon 19 Jul 2008 at 12:17 pm 8You are headed in the right direction, and you, by far, are the most equipped (knowledgewise) to handle this. You know the questions to ask, you know where to look to find answers. Jake is lucky to have you for a mom. Trust that you will be given the information you need to be able to take the next steps, whatever they may be.
My thoughts are with you. I believe in your ability and strength.
Trishs last blog post..Inventive Australian Shepherd
Jenion 19 Jul 2008 at 1:09 pm 9Sheila,
Hugs and prayers going your way!
Jeni
Deannaon 19 Jul 2008 at 1:25 pm 10Sheila,
I’ve been out of the loop for awhile. I’m sorry you’re going through such a rough patch. You’re stronger than you think you are. I will keep you and your whole family in my heart and prayers.
Deannas last blog post..Weathering the Storm
Cassaundraon 19 Jul 2008 at 1:48 pm 11I have been thinking about you guys and praying for you to find the right answers…….I still think you are dealing with parasites……….and I think you might be on to something…Stay calm and cool and level headed. You will get thru all this.
Peace to ya Sheila
White Hot Magikon 19 Jul 2008 at 3:12 pm 12I am so sorry you are going through this. I hope it proves to not be that and something more benign. I am sorry I hadn’t checked in earlier this week, we had gone on vacation and I am behind in my reading. I’ll pray for good news.
White Hot Magiks last blog post..Time to get er done.
Nikkion 19 Jul 2008 at 3:49 pm 13I can’t even begin to imagine what you must be going through so I won’t try. All I can say is that I’m sorry that you and your family are going through it. Wishing good things your way.
Johnon 19 Jul 2008 at 4:32 pm 14We love you and miss you, Sheila. You’re not going through this alone
We can’t wait for you guys to come back home. Love, John/Gabby/Brianna
Linda Abbiton 19 Jul 2008 at 5:57 pm 15My thoughts and prayers are with you all.
Linda Abbits last blog post..It Is Better to Laugh than to Cry!
Dr. Casonon 19 Jul 2008 at 6:52 pm 16Audubon Ron- Thank you again.
Awesome Mom- We still have some hope that this may be a fluke. The hardest thing right now is waiting. And being away from my girls and husband.
Lisa- Right! I keep forgetting that we don’t even have a diagnosis.
Erin- You’re right you’re right! We need to see what’s happening first and then we’ll deal with that.
Lance- Thank you.
Ann- Thank you as well.
Melissa- No it’s not!
Trish- I can do this. Is what I keep telling myself. That and praying.
Jeni- Thanks! I can’t wait to come home.
Deanna- Welcome back! Are you back to blogging again my friend?
Cassaundra- We should see something that might indicate that – yes?
White Hot- You are not any more behind in reading than I am. It’s all I can do to stay on top of Jakey and post here and there. Thank you for visiting me.
Nikki- Thank you.
John- Oh Honey now you have me crying. Everybody meet my husband, John, the love of my life and currently doing a bang up job as Mr. Mom. Kiss the girls and give some hugs for me! And not too much Hannah Montana please.
Linda- I haven’t been visiting a lot during this time but it looks like I should go and read your post!!
tiffon 19 Jul 2008 at 8:41 pm 17Hugs to you Sheila.
I know that sudden thud you feel when your gut feeling was right and you just don’t want it to be.
Thinking of you.
tiffs last blog post..Boonie Bureaucracy
Cath Lawsonon 19 Jul 2008 at 10:03 pm 18Hi Dr Cason – I’m sorry. I know you’ll be worrying until you know more. But hopefully it will be something that’s treatable.
Cath Lawsons last blog post..131 Star Bloggers and Their Best Posts
Donnaon 20 Jul 2008 at 4:12 am 19Hi Sweetheart! I’ll just say this….I believe.
Sending him And you, lots of love, light and healing…and Good news…hughughugs
Donnas last blog post..Zucchini Pie
Dr. Casonon 20 Jul 2008 at 4:47 am 20Tiff- Thanks tiff- I actually thought about you while I was in the hospital.
Cath- Yes I don’t think we’re talking about anything that’s not treatable. Which is positive!
Donna-I’m trying to harness all good energy as well. Thank you for “love, light and healing” Hugs to you as well.
kellysron 20 Jul 2008 at 7:38 am 21Sheila, got your email, sometimes it feels as though you already know someone? I can only imagine your racing thoughts, diff.dx, search engines, you want the answers, fearing them at the same time. A word of advice, try.. try.. try.. to take a deep breath, wait for the full picture. I’ve made myself sick with researching personal ailments, long story, another time. You are strong, intelligent, and can handle it all in due time, I pray for you, it’s hard to be alone with your son dwelling on it, soon you will be back with your husband and family, soon. Take care of yourself… Peace.
Guinevere Meadowon 20 Jul 2008 at 11:33 am 22oh honey. My thoughts and prayers are with you! It’s the uncertainty and the waiting that are the hardest. Our imaginations should can drive us out of our minds sometime.
Queen Mommyon 20 Jul 2008 at 10:45 pm 23Oh my. I have missed a day and all this! I hope all is deemed slight!!!
Queen Mommys last blog post..Note to self
Dr. Casonon 21 Jul 2008 at 6:14 pm 24Kelleysr- Thank you for the kind words. My colleague at home just kept saying to me- “Be strong Sheila” and it helped. I know that I can be here for Jake while we work this out.
Guin- I’ve had to just STOP thinking. I fear that I’m starting to go into a little denial.
Queen- Me too!
Bethon 22 Jul 2008 at 4:38 pm 25Thinking good thoughts as biopsy results loom on the horizon…
I did a GI elective in April and I was amazed at how common EE is. I’m not sure if we see it more in this area because we’re a regional referral center or if we just scope a whole lot of kids. Our docs are keen to scope early rather than later in the face of conventional treatment failure. All of the kids I’ve seen have done great once the disease is managed. I know it’s not the diagnosis you want, but it is manageable. “Know thine enemy” is a good rule to follow.
I’ll be thinking of you all today.
Beths last blog post..Awkward much?
Dr. Casonon 23 Jul 2008 at 7:00 pm 26Beth- What a confusing relatively new diagnosis! Yes I do believe in knowing your enemy but what was so confusing was that Jake didn’t seem to be bothered by his esophagus. Do all the kids have symptoms? i guess they should have something though right? Otherwise they wouldn’t be scoped!